New podcast episode: Keep Moving Forward
Tuesday, June 6, 2023
Episode 8: "Keep Moving Forward" - Autumn Johnson, mom who saved her child's life through determination and advocacy
Autum is a mother of three children, two of which have special needs. She is a self-taught expert of Spinal Muscular Atrophy (SMA) after her son was diagnosed as an infant and the doctors and medical professionals knew so little about the condition that she was told to research it on her own. Autum has spent the last six years fighting for the medication and standard of care that her son with SMA requires, and her advocacy has saved his life and hindered the progression of his disease. Determination and motivation to keep moving forward despite adversities is a way of life that resonates with many families of children with special health care needs.
Adjusting the Sails is a podcast hosted by the Paths for Parents and Family to Family programs at the WVU CED aimed to discuss the lives and specific challenges children with special health care needs and other disabilities and their families, caregivers, and service providers face, and how to manage those challenges. The podcast serves as a platform for all disability-related topics to be discussed and as a mediator between families and caregivers to share their stories and experiences. The podcast features guest speakers, panelists, and a variety of program representatives and service providers to offer education and training to the listener.